July 14th would have been my cousin Paul's 27th birthday.
Sadly, he died when he was 13, after a long and hard battle with Cystic Fibrosis.
From the Cystic Fibrosis Trust website, the facts about CF are as follows;
Cystic Fibrosis (CF) is one of the UK's most common life-threatening inherited diseases.
Cystic Fibrosis affects over 9,000 people in the UK.
Over two million people in the UK carry the faulty gene that causes Cystic Fibrosis - around 1
in 25 of the population.
If two carriers have a child, the baby has a 1 in 4 chance of having Cystic Fibrosis.
Cystic Fibrosis affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food.
Each week, five babies are born with Cystic Fibrosis.
Each week, two young lives are lost to Cystic Fibrosis.
Only half of those living with Cystic Fibrosis are likely to live past their late 30s.
My family all miss Paul every day. He was the very heart of our extended family, and had the biggest sense of humour about the struggles he dealt with every day.
In his name, we are holding a charity gig for the Cystic Fibrosis Trust, a fantastic charity that tries in every way to help everyone who is affected by a CF diagnosis, as well as fighting toward a breakthrough in both treatments and cure.
We have ALL bands confirmed, so go check them out!
Fin Ray, Heavily influenced by grunge and psychedelia, this garage band is brand new to the gig scene!